Sickle Cell & Me: 2-part free event
Join us in person for an exciting combo of Genomics research insights and an immersive Theatre production. Discover the latest discoveries in sickle cell disease and experience a powerful story come to life on stage. Don’t miss this unique chance to connect, learn, and be inspired!
Part 1:ÌýPriority Setting Partnership
Genomics England, the Sickle Cell Society, and the James Lind Alliance have co-produced a Priority Setting Partnership (PSP) for Sickle Cell and Genomics – resulting in 10 priorities for future research which will encourage innovative research that has the greatest possible benefit for people with the condition.
Hundreds of people with sickle cell, carers, carriers and healthcare professionals across the UK and beyond contributed to the top 10. In doing so, the PSP provided a rare and valuable opportunity to bring the views of both people and professionals with real-life experience of sickle cell into research.
This is an opportunity to share the top 10 priorities identified through this process and to hear your thoughts about the next steps.
Part 2: Crescent Cell, Sickle Moon
An exploration of care for people in sickle cell crises — imagined in a parallel universe.
Written by Mojisola Adebayo. Directed by Gail Babb Produced by the Sickle Cell Theatre Collective, in association with Tamasha